at last!!!!

At long last I have an appointment with the plastic surgeon.

It’s only been 25 months since I started this process. Geesh.

And though I did post previously that I would consider reconstruction if it was in the realm of possibilities, I have to tell you that I have changed my mind. I don’t want reconstruction. I did a LOT more research since that post. Here’s what would happen. I would need skin expanders inserted to provide a skin flap. Given the technique used on the left for mastectomy, where no soft tissue remains, there is no way that an implant would work, therefore a tram flap (major surgery where my own tissue is used from my stomach area—kind of like a tummy tuck) would have to be done. Want to know more about my options? Go here: www.breastreconstruction.ca.

There are a minimum of two procedures here, regardless of implant or tram flap. I can’t do more major surgery. That’s a personal statement, not a medical one. I’m tired of major surgeries. And I’m afraid of the potential for infection. Two surgeries, two abscesses—one more serious than the other. Enough is enough. I guess I better add that any course of action I choose to do would involve surgery and, as such, any surgery poses this risk of infection.What I want to avoid is major and multiple procedures, and complications. One surgery. That’s all I’m up for.

And, as I’ve said again and again, I don’t feel defined by breasts. I’m comfortable without. And that doesn’t mean that I’m not self-conscious in situations where I am meeting and interacting with new people who are unaware of my story, because I am, it’s just that I’m content and comfortable with Vince, my friends, my family and my co-workers. It’s about people knowing and/or loving me, the person on the inside and not what I am on the outside that has mattered to me.

So, my goal in my consultation is to talk about my wings and my ridged scar. Can either be improved so that I am more comfortable? I guess I’m finally about to find out.

The date? September 23rd.

Live Strong

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reality

The reality is that once someone has had cancer, it my come back. The choice that I make daily is to live my life for today and not for “what ifs”. That doesn’t mean to say that the worry and the thought isn’t always with me. Three years later I can honestly say that I don’t think about it when I first wake up as I used to and certainly not as daily. That’s kind of nice. But never do I truly relax either. I’m in a constant vigilant mode. I still do physical checks. And every rash, headache, ache, pain, swelling, cough, etc., sends me to the depths of hell and back before I can get a grip on myself and have that conversation with myself about whether to really worry or not. It’s a challenge to sort these into “nothing to worry about” and “something to talk to the doctor about”. I fluctuate between wanting to know and not wanting to know. And then if I do report it to my doctor, as I did last week, the fear of the test results put me into a new hell. This is how cancer has changed my life. I don’t get to just complain about my aches and pains, I have to get tests.

This past week was beyond description. My freak-o-meter was off the charts. When I look back at the Don’t Panic post, I shake my head. It so does NOT reflect the actual panic I had. I have to also admit, that post was the only communication I gave anyone (other than Vince, of course) that something may be wrong. I guarantee you that my friends and family no longer read this blog the way they did before. It was a safe way to express myself and not worry anyone else.

When I got the “all clear” on Wednesday I sobbed (not just cried). How do I describe the thoughts and fears about chemotherapy, needles, fatigue, other side effects, and most importantly stage IV cancer? To go through it again? To wonder if I could do it again, if only to keep me going for a good while. Once was bad enough. To face my mortality this time knowing that there was an end and who knows how quickly. Remembering the long battle Tracy had. There aren’t any words that can cover the plethora of thoughts I had.

After I collected myself, I was able to share out loud the whole of the story with others. I kind of got shit from one friend. She told me that it wasn’t good to keep it all inside and that acknowledging my fears to a quiet, trusted source  could be helpful to my overall anxiety to have someone calm around. I commented back that I would have had a lot of tears had I said it out loud. Her comeback? “Yours or mine?!?! Doesn’t matter. Tears dry up a lot faster than fear does.” Wow. I know good people.

I know that you can never truly know what I have gone through or what I go through now in my remission. I appreciate that everyone gives love and support.

Live Strong

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CLEAR

I’m OKAY – all is clear. Just allergies and/or a cold making me cough.

Oh thank God.

Live Strong

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don’t panic

I think my post title words are as much for me as they are for you.

I had my 6-month check up yesterday. I’ve had a cough since the end of April. It’s different now than in May and has changed as the time has gone by. However. It is a cough that hasn’t gone away.

S0 late yesterday I had an xray taken of my chest/lungs. I won’t have results till next week.

Yes I’m scared. The stats for my cancer are always on my mind.

Once again, it’s hurry up and wait.

Live Strong

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dates and numbers

Though my anxiety has decreased as time has passed, I don’t know that there is ever a day that goes by that I’m not thinking about these numbers.

  • 36 months – 3 years – ago today I had a double-mastectomy.
  • 45 months (as of May 9) since diagnosis.

I’m so glad to still be here. So emotional still.

I wonder if I shall ever stop counting.

Live Strong

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relay for life

My friend Kati has assembled a team to participate in the Canadian Cancer Society’s Relay for Life. This year I am not participating in a run or walk, so I am asking my friends and family to consider supporting Kati and her team (Family Mission Possible).

Online link to Kati’s personal page is here: http://convio.cancer.ca/site/TR/RelayForLife/RFL_ON_even_?px=3503119&pg=personal&fr_id=5620

Help find a cure.

Thank you everyone – I really appreciate it.

Live Strong

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emerging

I am emerging from my most recent funk. Wow, what a downer that was. I’m not a fan of those episodes. If I can take any solace in them, it’s that I am human.

Live each day to its fullest. It’s the one thing we can do.

Live Strong

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a little overwhelmed

I’m a little…no, a lot, overwhelmed and certainly feeling a little survivor guilt.

My coworker Janet finished chemo three weeks ago. She starts radiation next Friday. There isn’t a moment of her journey that I have forgotten about my own. Am I able to pay it forward with Janet? I hope so.

And Tracy. I can’t stop thinking about Tracy. It just doesn’t seem fair that I have the worse diagnosis. And here I am. And she isn’t.

And I think about Terri, one of Vince’s best friends who lost her battle.

And I think about all my friends and coworkers who have also had breast cancer.

I used to think breast cancer happened to other people. Now I feel surrounded. Not only that, I’m angry. Angry that loved ones are dying. Angry that loved ones have had this disease. Angry that I have had this disease. Angry that my future is and always will be uncertain.

Frak me. I hate this disease.

I’m sorry everyone. This is just one of those times when even I can be overwhelmed.

Live Strong

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good bye sweet tracy

Tracy passed away this past Saturday night after a 9-year journeywith breast cancer.

I am so honoured to have known her, to have laughed with her, and to have loved her.

Her final wish was that we not be too sad and to try and remember her with a smile. I’m trying, Tracy, I am.

Be at peace, my friend.

Live Strong

Obituary notice:

http://www.legacy.com/CAN/Obituaries.asp?Page=LifeStory&PersonID=140763705

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blessed be

Results for my family member are in: NOT cancer. However, there are some pre-cancerous cells in the cysts so, as a precaution, the oncologist does want her to go through chemo. Surgery isn’t an option to remove the cysts right now. It’s a good news scenario and a relief considering worst case was 3 to 6 months.

Oh joy. Oh happy day.

Live Strong

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